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Recovering
from Chronic Fatigue Syndrome:
A Guide to Self-Empowerment
By William Collinge,
Ph.D.
Table of Contents
Chapter 7. The Benefits of Mind/Body Medicine
"The imagery and relaxation
training have helped me more than any medication. I can actually feel physical
changes in my body. That takes away the anxiety I feel with this illness."
--Alice
In this chapter we will survey the range of psychological
therapies that can be used to promote recovery from CFS. This includes
individual and group therapies, as well as mind/body medicine techniques
you can use on your own. This will lay the groundwork for the "how to"
chapters that follow, dealing with specific techniques.
In 1987, Alice participated in my self-help
program in Incline Village, Nevada. At the time she was undergoing a two
week intensive treatment of intravenous acyclovir therapy in the hospital.
Acyclovir is a drug which inhibits the reproduction of viruses of the herpes
family, to which HHV6 and Epstein Barr virus belong. One of the side effects
of acyclovir therapy is escalating blood pressure, which needs to be closely
monitored.
Alice was about half way through her
treatment protocol when she enrolled in the group. She brought her stainless
steel drip apparatus with her from the hospital, and stood it up beside
her in the circle with the other patients and their spouses.
The first day involved a series of relaxation
and deep breathing exercises. The next day Alice returned to the group
bubbling with excitement. She reported that the previous evening her blood
pressure had returned to normal. The nursing staff were mystified, and
wanted to know how she had done it.
The benefits Alice received are not
at all uncommon. They illustrate the fact that we can directly influence
what goes on in our body. The branch of medicine that uses behavior change
for influencing the physical body is called behavioral medicine, or more
popularly, mind/body medicine. In recent years mind/body medicine has been
increasingly finding its way into the mainstream. In chronic illnesses
like CFS, HIV, cancer, it lies at the heart of self-empowerment. In this
chapter we will examine the benefits--and some unexpected problems--that
can arise in using mind/body medicine in CFS.
Perhaps this is a good time to reiterate
the fact that CFS is not a psychosomatic disease. "Psycho-somatic" means
the mind is the root cause of symptoms in the body. If anything, CFS is
a "somato-psychic" disease. The events in the body--specifically the immune
system--influence the brain, mind, and emotions. In mind/body medicine,
however, we are deliberately using the pathways of connection between mind
and body to influence what goes on in the body. In a sense we are exploiting
the mind/body connections to make things happen in our favor.
The person with CFS is likely to encounter
several different forms of psychological services, and mind/body techniques
may be a part of any of them. Possible forms of psychological help include
individual or family therapy, group therapy, hypnotherapy, and medical
hypnosis, and several derivatives of these.
Because they are used to help with a
physical illness, these are all forms of "complementary therapy." This
means they work along side medical treatment in a supportive way. I like
this term because it communicates its relationship with medical treatment--that
it does not replace or compete with it, but acts in partnership with it.
This is an important distinction because many people erroneously think
of mind/body medicine as "alternative" medicine, something which you would
use instead of medical treatment. No responsible health professional would
recommend these approaches as alternatives to established treatment.
WHAT KINDS OF PSYCHOLOGICAL HELP ARE AVAILABLE FOR CFS?
Very little research has been done to
study the benefits of psychological therapies with CFS. However, we can
borrow insights from work with other immune-related illnesses to gauge
the role and likely benefits of such intervention in CFS. Below we will
consider the benefits of the various approaches you are most likely to
encounter.
Psychotherapy
Psychotherapy is conducted by a trained,
licensed or certified therapist (clinical psychologist, clinical social
worker, marriage and family therapist, psychiatrist). Of course, before
entering into such a relationship with a therapist, you should determine
whether they are informed about CFS. Many are not, and may be inclined
to take a "psychosomatic" orientation toward this condition. Always make
sure they have done their homework.
Psychotherapy offers an excellent opportunity
to explore your feelings about your situation, identify problems in relating
with your family, learn how to manage symptoms, or explore the challenges
to coping with chronic illness. Though such therapy may be brief, it can
have important benefits. One of the greatest benefits is improving the
quality of life.
As discussed earlier, the challenges
of CFS require a great deal of coping, not only with the symptoms but with
the stress of illness in general. Therapy can be very helpful in reminding
you to respect your limits, that symptoms are transitory, that healing
is possible, and to follow through with self-help practices. By keeping
all these challenges in perspective, the quality of your day to day living
can be much improved over living in a state of constant despair of fear.
Aside from improving the quality of
life, can psychotherapy influence the course of CFS? There are no definitive
studies that answer this question, although a great deal of clinical experience
strongly suggests this. And when you consider the importance of lifestyle
change and reduced stress in promoting recovery, obviously therapy can,
if it helps with these issues, contribute to faster recovery. On this point
we may borrow from the cancer literature, which seems directly relevant
to this issue in CFS. The value of psychotherapy is articulated by psychologist
Dr. Alastair Cunningham, who states:
Although epidemiological considerations
suggest that the contribution of psychological factors to cancer onset
is small... compared to purely biological and social factors (e.g., environmental
carcinogens), no upper limit to what can be achieved by psychotherapy is
necessarily thereby set: the relative influence of the psyche on outcome
may be greatly expanded by such therapy, overriding the usual progression
of disease.
There are certain risks in placing a
great deal of emphasis on psychotherapy for physical healing, however.
These will be discussed at length later in this chapter.
Group Programs
There is no question that group participation
can be valuable. A group can be a source of inspiration, emotional support,
and information about handling symptoms. Two basic kinds of groups are
available: support groups led by peers, and group programs led by professionally
trained therapists.
Support groups. These groups offer
an especially good arena for exchanging information about physicians, treatment,
and research news. Support groups are also helpful in overcoming the isolation
and lack of social support which so many people with CFS experience. And
they can be a source of reinforcement for continuing on your path of self-empowerment.
You can gain a great deal from
witnessing how others handle the challenge of illness, and in what ways
their journey might parallel your own. The support group can also be a
rich resource of wisdom and experience in devising coping strategies for
symptoms and for the emotional distress of illness.
There is a downside to support groups.
You are not likely to meet people who have recovered in such a group, leaving
the impression that no one recovers. Also some groups can inadvertently
reinforce the "victim" role. That is, they can become a place where your
identity as a "victim of CFS" is actually strengthened, and this can subtly
work against your sense of hope and positive expectancy about recovery.
The risks of this happening are especially high in those few groups where
the emphasis seems to be on exchanging horror stories about symptoms.
I have heard many patients say they
have chosen to quit attending support groups because of this problem of
dwelling on the negative. Yet there are times, especially early in the
illness, when it is a relief to know that you are not alone in your experience
of your symptoms.
You must judge for yourself whether
a particular support group has its focus in the right place for you. Is
it reinforcing self-empowerment? This is a good question to discuss with
the other participants.
You can determine whether there is a
CFS support group in your area by contacting the resources listed in Appendix
C.
Group therapy programs. These
groups are usually led by credentialed, professional therapists. Such group
programs are certainly supportive and therapeutic, but they usually are
organized around teaching specific skills such as relaxation, meditation,
imagery, pain control, stress reduction, and coping with the stress of
illness.
Many such groups have been studied and
found to have positive impact, not only on quality of life, but in some
cases on immune functioning and health status.
One example is the Self-Help Intensive
at the Cancer Support and Education Center, Menlo Park, CA. While originally
designed for cancer patients, the program also serves people with CFS and
other chronic illnesses. The ten-day, 60-hour program helps people with
imagery and relaxation training, lifestyle change, emotional expression,
strengthening fighting spirit, and using their illness as a teacher.
I conducted an outcome study of this
program as part of my doctoral dissertation at U. C. Berkeley, before joining
the staff of the Center. The study involved 59 cancer patients who took
the Self-Help Intensive, and found significant improvements in emotional
expression, fighting spirit, and several aspects of quality of life. It
also showed that people in even the more advanced stages of illness can
benefit from such training. The benefits were still present three months
after completing the program, indicating that the effects can be lasting.
A similar study of 48 patients with
H.I.V. who also took the same Self-Help Intensive found significant improvement
in emotional expression and health locus of control, and reduced tension,
anxiety, fatigue, depression, and total mood disturbance. These findings,
as well of those of the cancer patient study, represent improvements that
have been found in the more general PNI research to be associated with
better immune functioning.
At U.C.L.A., a team of researchers studied
outcomes of a group program for 66 post-surgical malignant melanoma patients.
The six-week structured group program included health education, stress
management, training in problem-solving, and psychological support. Results
showed significant improvement in both psychological coping and immune
functioning. Six months after the program, there were significantly lower
levels of psychological distress, and higher levels of positive coping
methods in comparison to patients who did not have the group. There were
also significant increases in the percentage of NK cells and in NK cell
cytotoxic activity (their functional effectiveness).
One of the more exciting studies in
this field dealt with increasing survival time in cancer. David Spiegel,
M.D. and his colleagues at Stanford University and U.C. Berkeley conducted
a ten-year study of 86 women with metastatic breast cancer. The groups
lasted a year, meeting weekly for ninety minutes, and used a form of therapy
called "supportive-expressive therapy." Though the researchers had set
out to study quality of life, they were surprised to find that survival
time was nearly double that of a comparable group of women not receiving
the group therapy (averaging 36 months versus 18 months).
This highly regarded study represents a breakthrough
in linking psychological treatment with medical outcome. How could the
difference in survival time have occurred? We do not know whether the benefit
was due to a particular technique of therapy, the experience of belonging
or affiliation in the group, emotional expression, shifts in attitude,
improved compliance with medical recommendations, or changes in other lifestyle
behaviors that were encouraged by the group.
It is also possible that, since the immune
system is the main line of defense in cancer, the results were due to improved
immune responses alone. Or, perhaps most likely, the results were multicausal,
and many different impacts of the program had a synergistic effect. These
questions are now being pursued by Spiegel and his research team. Meanwhile,
as a result of this study, group therapy is now being seen in a different
light compared to before when it was thought of as only a quality of life
intervention.
The effects reported in the above studies
represent a growing body of findings about benefits of group programs for
people with immune-related illnesses. I consider it highly likely that
when similar studies are conducted for people with CFS, we will find similar
benefits. In the meantime, I encourage you to seek out group therapy programs--taking
care, of course, to be sure that whoever is leading the program has an
accurate understanding of CFS.
MIND/BODY MEDICINE
The term "mind/body medicine" covers
a variety of techniques you can use to help the mind influence the body.
The basic tools of mind/body medicine include relaxation training, meditation,
imagery, and related approaches. These are frequently used in the group
and individual therapy programs discussed above.
Later chapters will be devoted
to showing you how to use these methods with CFS. But first, I would like
to acquaint you with the rationale, and especially the research backing,
for the use of these techniques.
Mind/body medicine is usually thought of as
something new, controversial, subject to abuse or false claims, and needing
a lot of study to prove that it has any value. However, the principles
of mind/body medicine are actually among the most thoroughly tested in
all of medical science. I can make this unusual statement because the mind/body
connection is tested in virtually all research on new drugs.
Typically, when a new drug is being tested,
some patients are given the drug and some are given a "placebo," a fake
pill such as a useless sugar pill. The placebo triggers a positive expectancy
or hope in the mind of the person taking it. Often this will result in
changes in the body, called placebo effects. The drug might then
be rejected because it is found to be no better than the placebo effect.
The researchers may say in disappointment, "We found nothing of value.
The drug was no better than placebo." The flip side of this statement,
of course, is, "We have proven once again the power of mind/body medicine.
It is just as effective as the drug."
In mind/body medicine, we are deliberately
exploiting the pathways used in the placebo response. The viability of
these pathways has been proven by literally thousands of drug studies.
Let us now turn to the techniques.
Relaxation Training
By now is should be clear that stress
plays an important role in CFS. It contributes to your vulnerability to
developing the syndrome, it can aggravate symptoms that are already present,
and it can serve as a trigger of relapse. This all happens because stress
sets off physiological and chemical changes in your body that can have
toxic effects and can disturb immunity. These changes are collectively
called the stress response.
Fortunately there is an antidote to
the stress response. It is natural, everyone is capable of it, and it is
free. It is called the relaxation response. This too is a set of physiological
and chemical changes in your body. However, the changes comprising the
relaxation response are opposite to the stress response--they are almost
like a mirror image.
The relaxation response was discovered
and named by Harvard psychiatrist Herbert Benson, M.D. and his colleagues
in 1974., They were studying a pattern of physiological changes that occurs
in people practicing a form of meditation called TM (transcendental meditation).
This pattern of changes was found to represent a very beneficial state,
one to which meditation naturally leads.
Rather than capillaries constricting and limiting
the flow of blood, they open and blood flows more freely. Rather than hands
and feet being cold and clammy, they are warm. Rather than heart rate increasing,
it slows and relaxes. Rather than muscles being tense and tight, they become
more flexible, allowing circulation to flow freely through them. Rather
than breathing being rapid, shallow and constricted, it becomes more full
and deep. These are a few of the important benefits discovered by Benson
and his colleagues.
We now also have evidence of its benefits
for the immune system. In one study, 45 geriatric residents were randomly
assigned to one of three groups: relaxation training, social contact, and
no intervention. Those in the first two groups were seen individually three
times per week for a month. Blood samples were drawn before the program,
immediately after the month, and a month later. Those who were trained
in relaxation showed a significant improvement in NK cell activity, as
well as lower antibody titers to a herpes simplex type one antigen. In
addition, there were significant decreases in symptoms of emotional distress.
The finding about higher NK cell functioning
is especially important for CFS in that as we have seen earlier, depressed
natural killer cell activity is one of the features of this syndrome.
Further evidence of benefit to immunity
comes from a study we discussed earlier, of the relationship between exam
stress and immunity in 34 medical students. Half the students were randomly
assigned to a relaxation training program. The results showed that the
frequency of relaxation practice was significantly associated with the
percentage of T-helper cells circulating in the blood during the exam period.
In other words, the more the students practiced the relaxation response,
the higher was the percentage of T-helper cells. These cells, of course,
stimulate the immune response. The researchers concluded that relaxation
achieved in this way may enhance at least some components of the immune
system, and perhaps influence the incidence and course of disease.
The regular use of the relaxation response
may be one of the most healing activities we can do, yet because it's free,
people tend not to value it as such. It's a simple, subtle, and powerful
way of helping make room for your body's healing resources to express themselves.
Imagery
Imagery is a popular tool of most mind/body
programs, although few scientific studies have tried to measure its effects.
The use of imagery with CFS involves inventing symbols in your mind's eye
which will help you play out in a visualization how you want things to
occur in your body. This may involve visualizing your immune system working
harmoniously and in balance, seeing your immune system eliminating viruses
or other pathogens, or perhaps a general symbol to represent the syndrome,
and another symbol to represent all your healing forces. In any event,
visualization is a process in which you see the desired outcome develop.
How does imagery produce its effects?
Scientists are investigating exactly how. It could be that the messages
we are sending through the pathways connecting mind and body--the neuroimmune
network discussed in Chapter 4--are heard at the cellular level, and the
body respectfully responds to our commands. We could call this the "specificity
hypothesis," meaning that the effects are very specific and depend on the
details of the message we want to send.
There is now evidence for the specificity
hypothesis. In a study at the University of Arkansas, an experienced meditator
using imagery techniques was able to manipulate her immune system's reaction
to an injection of harmless virus particles just below the skin. The material
injected, called a "varicella zoster test reagent," ordinarily gives rise
to a type of inflammation called a delayed hypersensitivity reaction. This
reaction is created by white cells releasing chemicals, such as histamine,
which have the effect of causing inflammation.
It was found that on demand, the woman
being studied could alternately (1) suppress her inflammatory reaction
and white cell responsiveness, and (2) allow her inflammatory reaction
to respond normally. This experiment suggests that she was able to communicate
with and influence the behavior of her white cells.
In another study involving imagery,
researchers at Michigan State University found that students could use
guided imagery could improve the functioning of certain white cells called
neutrophils. They could also decrease, but not increase, white cell counts.
At one point in the study, a form of imagery intended to increase neutrophil
count unexpectedly caused a drop instead. Subsequently, students were taught
imagery explicitly intended to keep the neutrophil count steady, while
increasing their effectiveness. Both goals were achieved.
These studies suggest intriguing questions
about whether it might be possible for people with CFS to deal with the
problem of chronic immune activation through such methods. Could it be
that by imagining the white cells becoming more relaxed and practicing
the relaxation response themselves, their hyperactivity could be reduced?
The specificity hypothesis is not the
only avenue being explored for how imagery may benefit immunity. Another
point of view is the "general effect" hypothesis. This means that benefits
can arise from the general overall feeling of greater control that comes
when you believe you can influence your health through these methods, and
as your confidence grows. There is evidence for this in studies where a
sense of control over the source of stress has been linked to better immunity,
compared to the sense of having no control.
For example, in a study at Stanford
University, 20 subjects who were afraid of snakes agreed to have blood
samples taken to test the changes in immune responsiveness as they got
close to and, eventually, handled snakes. As their sense of mastery and
confidence, or "self-efficacy" increased, their blood chemistry changed
to reflect significantly better immune functioning.
This increasing sense of self-efficacy may
have been the factor at work in a study of cancer patients which found
improvement in immunity associated with imagery practice. Ten metastatic
cancer patients attended monthly group sessions for a year in which they
were supervised in imagery practice. Between sessions they performed the
exercises twice a day. After each monthly meeting, blood samples were drawn
to monitor immunologic changes. Significant improvements were found in
several immune functions, including natural killer cell activity.
If feelings of confidence or competence
are really the key, then whatever method you choose--if you use it regularly--can
contribute to restored balance in immune functioning. This is consistent
with the advice of Carl Simonton, M.D. who once told me that if you feel
hopeful, powerful, and optimistic after doing your imagery, then that is
the criterion of success, much more than the details of the images used.
It follows that if you are confident in your ability to influence your
health, this confidence will reduce the degree of stress you feel as a
result of CFS. Then your healing can progress more readily.
AVOIDING THE PERILS OF MIND/BODY MEDICINE
The explosive growth of interest in
mind/body medicine has spawned a shift in our attitudes and beliefs about
healing. However, in their enthusiasm to jump on the bandwagon, many popular
books and magazines have fostered some erroneous beliefs which can lead
to feelings of guilt, self-blame, confusion, despair, or hopelessness in
people attempting to deal with CFS through a mind/body model. We can call
this the "psychosocial morbidity" of mind/body medicine.
Some doctors take a conservative approach,
discouraging patients from using complementary therapies for fear of the
psychosocial morbidity which may result if the patient doesn't do well
or if their condition deteriorates. This approach has its own risks, however,
namely that the person may miss a helpful service; or worse, may interpret
the physician's attitude as suggesting a hopeless situation, leading to
false despair. Other physicians support complementary therapies but help
the patient to explore their expectations to make sure they are realistic.
The way to avoid the risks is to have a realistic
understanding of the benefits and limits of mind/body medicine. I have
found five key principles of mind/body medicine to be sources of trouble
for many people. While many of these principles are based on well-intentioned
ideas, we need to refine our ways of thinking--our "paradigms"--to be more
in step with the psychology of healing. I will discuss these from the point
of view of shifting from old to new paradigms.
The Meaning of Responsibility
You've probably heard these sayings:
"Take responsibility for your health." "You are responsible for your health."
"You are the creator of your health." The movement is away from the passive
orientation ("Here, doctor, my health is none of my business, you take
care of it"), and toward personal empowerment. Unfortunately some patients
have followed this line of thinking to undesirable conclusions.
Old Paradigm: Responsibility Means
Ultimate Control and Ultimate Blame. Most of us grew up in a culture in
which the word "responsibility" had a definite charge to it. As children
we associated irresponsibility with misbehavior, punishment, blame, fault,
shame and guilt. It was often used in the context of discipline or threats
of discipline at home or school. This old idea of "taking responsibility"
is usually oriented to self-judgment for one's past behavior. By applying
these attitudes to health, it's not difficult to see how some people conclude:
Since I am responsible for my
health, I must have given myself CFS. It's my fault, and it serves me right.
I brought it on myself, and I must figure out why so I can correct it.
Whether I get well depends on how hard I work on myself...
New Paradigm: Responsibility as
Here and Now. Rather than having a retrospective, punitive focus, responsibility
is here and now, present tense. It has to do with how you live your life
from this moment forward. In fact it's irresponsible to indulge in self-condemnation
about the past. We probably would all have lived differently if we had
known then what we know now, but that's not the case. Responsibility means
responding here and now to the challenges you face, given the resources
you have now, both inner and outer. This includes the intelligent use of
medical treatment, as well as lifestyle change and self-help.
There can be value in looking at the
past to see how we may have contributed to our vulnerability, especially
if we engaged in risky or unhealthy behavior which continues today. This
kind of looking within is done with an exploratory attitude toward life's
lessons, not with a blameful attitude. If you remember the multicausal
perspective, it's impossible to say to what extent past behavior contributed
to the onset of CFS. To blame yourself about the past is a distraction
from helping yourself now. The key is to shift from self-blame for the
past to self-support for the present.
Hope
Hope refers to a positive expectancy
about the future with the belief that something better than the current
circumstances is possible. Its opposite is despair. In CFS this is especially
important, since belief in recovery and in your ability to influence it
are so central.
Old Paradigm: Statistical Odds
Determine Hope. In the old paradigm, hope is considered a matter of statistical
odds. Most illnesses have a predictable course and statistics have been
generated about the length and stages of illness. People who hope for some
different outcome other than what the statistics suggest would be subject
to accusations of "false hope." This is especially true, of course, with
illnesses such as advanced cancers or HIV where the prognosis is grim--even
though people have been known to defeat the odds.
In a sense it is good that we do not
yet have statistics about recovery time in CFS, for if we did, people might
tend to assume that those statistics applied to them as individuals.
New Paradigm: Hope Amid Uncertainty.
Hope can be separated from statistical odds. For example, a person may
hope to defy the statistics, or that a cure will be discovered soon, while
fully understanding the realistic nature of CFS. He can believe in the
possibility of the unusual or unexpected.
Stories of people surviving normally
fatal illnesses have inspired others to be hopeful where they may have
not been before. And of course hope applies to dimensions other than just
physical recovery. People can hope for healing emotionally, spiritually,
and in relationships--even in a dying process.
In this paradigm, hope by its very nature
cannot be false. However, it should exist alongside a realistic understanding
of the challenge one faces. Hope can exist with unrealistic understanding
as well as with realistic understanding.
Emotions
Emotions and emotional expression are often
difficult areas for both patients and helpers. Yet as we saw earlier, emotion
plays an important role in host resistance and quality of life.
Old Paradigm: Emotions as "Positive
or Negative." Our anti-emotional culture promotes the idea that emotions
can be divided into positive and negative. Those that feel good and are
pleasant (joy, love, happiness) are labelled positive, and those that feel
bad or unpleasant (fear, sadness, anger) are labelled negative.
Many people who embrace this paradigm believe
that emotions are an adversary to be mastered or controlled. It goes something
like this:
Negative emotions are bad for your health
and positive emotions are good for your health, so get negative emotions
out of your life in order to promote your healing. Negative emotions go
against having a positive mental attitude which is necessary for healing.
Don't feel negative emotions!
Unfortunately this conditioning goes very
deep and is often shared by health care providers. The result can be a
subtle form of conspiracy between helper and patient in believing that
there are "negative" emotions, and the patient then seeks to repress or
suppress these authentic aspects of life.
New Paradigm: Emotion as
Energy to be Expressed. In the new paradigm, what's important is not attaching
a positive or negative value to emotions. Rather it's emotional expression
that influences health and quality of life. The need for expression applies
to all emotions--anger, fear, and sadness as well as love and joy. Expression
is health promoting, and suppression is health negating. As Dr. Lydia Temoshok,
a leading mind/body researcher, stated when asked about the role of emotions
in immunity, "If there is a hero in this, it's probably emotional expression."
Rather than thinking of emotions as positive
or negative, they are simply one expression of your life energy as it flows
through you. Imagine a beam of light shining through a prism that separates
the light into a rainbow of colors. The prism is the person, the beam of
light his life energy, and the rainbow represents the array of colors that
energy can take, or the emotions. Placing your finger on the prism to block
out certain colors will disturb the flow of light through the prism, and
yield a distorted rainbow. Likewise, attempting to disown or deny any aspects
of your emotional experience will disturb the flow of life energy through
you, and adversely affect your body's healing processes.
Many people benefit from freer expression,
even to the point of catharsis (e.g. crying, or pounding cushions with
a tennis racket, if appropriate). They often find tremendous relief and
new stores of energy through emotional release.
Positive Mental Attitude
Often people think of their mental attitude
as a weapon for influencing the course of illness.
Old Paradigm: Feel Good and Optimistic
at All Times. Patients often have the belief that a positive mental attitude
is health-promoting, and therefore they should strive at all times to display
this. "Positive" is interpreted as meaning feeling only "positive emotions"
and never allowing oneself to appear helpless, hopeless, or in despair
(even if these feelings are actually present). Patients' efforts are often
driven by a feeling of urgency and tension: "If I let down on my attitude,
it will have dire consequences for my health." Often such beliefs are based
on reading about links between depression and illness, or the healing power
of laughter.
The old paradigm of the positive attitude
usually goes hand in glove with the old paradigm of emotions. Of course
there is value in maintaining an optimistic outlook. The difficulty arises
when belief in the "positive mental attitude" becomes the rationale for
suppressing emotions, denying needs, refusing to acknowledge symptoms,
or withholding requests for support. Many people misconstrue this belief
to mean we should disregard these aspects which we associate with our "dark
side." Yet the willingness to embrace and express these aspects of ourselves
can play a vital part in healing.
New Paradigm: Positively Accept
and Express All of Your Feelings. A truly positive attitude means having
a positive attitude toward all your emotions. This means a positive acknowledgment,
a positive acceptance, and a positive expression. You can positively embrace
all that you are, and not judge or disown any authentic aspects of your
experience, including acknowledgment of those times when you feel hopelessness
or despair. Through this positive acceptance of all aspects of yourself,
your energy is not bound up in the suppression or repression of feelings
and is free to help with healing.
Perhaps you can recall a time in the
past when you had what you'd call a good cry. Maybe you remember the feeling
of freshness or lightness that occurred afterwards. It may sound ironic,
but the quickest way to free yourself from feelings of despair or hopelessness
is by their full expression. Feelings are transitory if we allow them to
be.
The Role of Self-Help
Patients often have the goal of mastering
certain self-help techniques such as imagery or the relaxation response.
They have read books or reports in which others attributed their recovery
to these techniques, and have heard of research about the effects of such
techniques on immunity. They usually do not understand that when such studies
report "significant" effects of a technique, this simply means that a measurable
impact has occurred, even though that impact may or may not be of a magnitude
to influence physical well-being. Such studies are important for instilling
hope about the possible pathways to influence health, but they do not guarantee
healing for a given patient.
Old Paradigm: Self-Help is Curative,
and Depends on My Performance. Difficulty arises from the belief that these
techniques are themselves like a medical treatment. Hence the belief may
be something like this:
I'm going to learn to visualize,
practice it regularly, and if I do it well enough, it will be successful
in ridding me of CFS. If I don't get better, it will be because I didn't
do the techniques well enough or often enough.
The problem is the belief that the technique
itself is curative, and that one's performance is the determining factor
of medical outcome. The person may then feel performance anxiety and fear
of failure. If these feelings are present during daily practice, the person
reinforces precisely those states of anxiety which the techniques are intended
to help. Another way of saying this is that the "scared inner child" is
the one who does the technique rather than the composed, adequate adult
who sees the big picture and relaxes into the process.
New Paradigm: Self-Help as a Contribution.
You can visualize perfectly and do everything right ten times a day, but
there is no guarantee of what will happen medically. Such techniques must
be seen as contributions to the overall program, but not as determining
factors. They can in themselves be rewarding in terms of mood states, feeling
of hope and optimism, reducing symptoms, and improving quality of life.
They are a way of taking responsibility
to do the best you can with the resources you have now. They may also contribute
to the overall flow of the healing process in the body, but they are not
a panacea. The realistic perspective is to realize that self help is an
important contribution to the larger multicausal approach.
LIVING WITH AMBIGUITY
Throughout this book I have been stressing
the multicausal perspective, and the idea that both the illness and your
recovery are influenced by many combined factors. One difficulty with the
multicausal perspective is its ambiguity. It certainly would be easier
to organize your response to a single cause such as a virus, than to tolerate
the ambiguity of being told the illness is multicausal and there is nowhere
to lay the blame. In this ambiguity, some will tend to even blame themselves,
for this at least gives them a focus for their anger.
Likewise, it is easier to place all
your hope for recovery in a single medication or even a single self-help
strategy. Yet, you must constantly remind yourself of the big picture in
coping with this illness. Often it is necessary to close your eyes, take
a deep breath, and remind yourself that you can only do the best you can
do, bring all the pieces together that you can, and then be patient.
In the following chapters we will explore
in greater depth self-help strategies that will help you take advantage
of the mind/body connection.
Audio CD Program
Available
Recovering from
CFS:
The Home Self-Empowerment
Program For information about Dr. Collinge's
four-CD audio program of inspirational talks and guided self-healing
exercises that accompany this book, click here.
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